Today Josh has been awake more than the past few days. Kobie came to see us today and Josh really enjoyed that! Hopefully tomorrow we will be moving to another room. We had some issues with unwanted visitors so now if you want to know what room Josh is in you have to call/text either his cell phone or mine; you will not be able to call the hospital and ask them. I highly doubt our unwanted visitor will read the blog but I can’t take chances as they upset Josh.
The rehab team came to talk to us about rehab today. We have to decide what we want to do by Monday. On Monday 2 more nurses on the rehab team and discuss what we have decided. Basically we have 3 options:
Option 1: Inpatient rehab for 2-3 weeks
Option 2: Outpatient rehab in which Josh will go to day rehab everyday for a few weeks
Option 3: Go home with therapy to come to our house everyday
I worry about how I will be able to care for Josh by myself right now, he would be totally dependent on me. Then we would have to figure out how to get him up the front steps into the house and how to transport him and the wheelchair to radiation everyday. We are not sure option 1 or 2 will even work for us as he will start radiation in about 10-12 days. The therapy team we talked to today said their goal at the rehab was rehab not radiation. Our goal is radiation then rehab. We still have to weigh our options but I’m sure nothing will be set in stone until we talk to them on Monday.
